A "tubeless" Lila!!!!
That's right - Lila had her last tube removed today (the central line) and I think it wore her out, she slept almost the whole day. That or all the eating she was doing because she also gained 30 grams!!! That may not seem like a lot, but it is the gain we were looking for and what needed to happen for her to go home tomorrow! Our little "porker" went from a teeny 2.805 kg to a whopping 2.835 kg (about 6 pounds, 4 ounces). Our surgeon said that he wanted to see her gain 30 grams per day so she made the cut. I personally think she gained a little more than that because last night she was weighed with the central line in and tonight it was out so that has to account for a few more grams of gain. Who cares - the important thing is she gained and barring any unforeseen issues Lila is coming home tomorrow, just in time for her first holiday.



We had a good day with Lila. Tom brought Brody to the hospital after work and we took her outside for about 2 minutes until we realized how cold it was and it was raining. Brody kept giving Lila hugs and kisses. We'll see if those keep up when she comes home and he realizes he has to share the spotlight now.
Brody also discovered a new "statue" at Children's and kept telling us about its "candle" and "hat." He could not get over how the statue had a pirate on it and so did his shirt!
Lila's umbilical cord stump also fell off 2 days ago and we can now see where the gastroschisis repair was and how small of a scar she will have. I will post pictures later - I think I am going to do a before and after, but will put up a warning to anyone who is squeamish and doesn't want to see. I want to do it for posterity to show how far Lila has come in just 3 and a half weeks. I am planning on printing out this blog and showing it to her when she is older so she can see how many people prayed for her and loved her before they even knew her.
Tom is spending the night at the hospital again - I am still on the verge of getting sick and trying to get as much rest as I can before she comes home and I am up all night. I will update tomorrow, hopefully with pictures of Lila at home with all of us under one roof!
I'm so glad to hear Lila's doing so well! Our son is due in September and also has gastroschisis, so your blog has been a HUGE comfort to read! I'm so glad to know more about what we might be expecting down the road, and it's incredibly encouraging to see Lila doing so well. I check in almost every day. Thank you so much for sharing your story! God bless you and your family! Helen in IL
ReplyDeleteEmily its great to hear that Lila is progressing go fast. It must be great to know that you will all be home together soon. Tell Tom I said Hi and we will continue to pray.
ReplyDeleteHappy First Fourth of July Lila!
We are so proud of little Lila! this is a wonderful way for you to document her journey. We will continue to pray for her and cannot wait to meet her. If you need anything, please do not hesitate to call my mom or me. Happy Fourth of July! and tell Brody and Tom we say hello!
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