I hope I'm not being premature in writing this post, but we definitely had better days yesterday and today. Thank you to everyone who kept us in their thoughts and prayers that that would be the case. Lila did well yesterday with her NG tube on gravity and hardly had any volumes come out of it, most of which was just spit. She did so well that they took her tube out again today and she has done very well so far. We are keeping our fingers crossed that she continues to do well throughout the evening with no throwing up. If she does, we will probably start oral feeds tomorrow morning. I don't know if I am getting my hopes up too much, but I have a better feeling about today than I did on Saturday. Lila just looked much more peaceful today and was very pleasant all night last night and today. She also pooped again and has been passing gas which is also a good sign that her intestines are starting to work. Again, sorry Lila, but these are the things we are excited about right now! I really hope I don't have to post on here again tonight that there were more setbacks and can post tomorrow that she had her first "real food." Thanks again to everyone for your support!
Here is our "tubeless" (at least on her face) baby girl:
She is adorable. So glad you've been able to dress her in "home" clothes. Much more fashionable than the hospital gown!Hope she's able to feed tomorrow. That will be an exciting milestone!
ReplyDelete