Saturday, June 27, 2009
Quick update
Just have a minute to update, but wanted to let you all know that Lila continues to do well. She is up to 35 mLs at each feeding. They are also letting me breast feed for about 2 minutes first, then offering the bottle. Lila continues to tolerate the feedings well with no significant throwing up or abdominal distension. I am heading down to the hospital soon to give Lila her 9pm feeding. I am getting a little frustrated at the weekends in the hospital - they don't like to change much as far as feed volumes, TPN numbers, etc. One doctor went so far as to say that Sunday is a "day of rest" - as far as I'm concerned, there is no "rest" until she comes home. Hopefully, that will be happening soon. I have been badgering the nurses about decreasing her TPN, which they agree with, so that Lila can establish some form of a hunger cycle - right now she doesn't seem to have that yet because she is getting so much by mouth and through her TPN (which is continuous). I have been spending too much time with the dieticians at work! I am hoping that they decrease the amount of time she is on TPN in the next day or so and she can start to feel hunger which will help with feeding. I'll post some new pictures tomorrow when I get a chance. Thanks again for all of your support!
Subscribe to:
Post Comments (Atom)
Weekends at the hospital do suck! Try asking her regular doctor to write orders for the weekend on Friday that give the weekend on call doctor some guidelines, i.e. "Decrease TPN up to 40 ml per day as tolerate" or "Increase feeds 5-10 ml over the next 2 days as tolerated." On call doctors are more willing to make changes for patients that aren't theirs if the patients doctor gives them some guidelines... Glad to hear you've been able to breast feed her. An exciting development!
ReplyDelete