Well we're pretty much keeping status quo for now. Lila continues to do well as far as her vitals are concerned and no issues have come up with her intestines except that the bile continues to drain from her OG tube which Lila does not like. She seems to get pretty irritated with it and often pulls on it when she is awake, which at this point, is not too often. Lila is now down to having only 2 tubes, the central line and her OG tube. They removed her nasal cannula yesterday so we can finally see almost all of her face. The OG tube pushes down on her lips so that's the only part of her face that we can't really "see" yet. They also removed both IV lines that she had in each of her hands - neither was any good anymore so they will just use her central line if they need IV access.
We have been spending basically all day at the hospital all week, but took the morning off this morning to take Brody to the park (I'll post pictures later). We needed to do something fun with him and being at the hospital with him is definitely not very fun. The 2 sibling centers that the hospital has won't be open until the fall so there is a very limited amount of places for him to play. Tom is going back to work tomorrow so we are going to have to figure out how I will split my time between Brody and Lila, but it will be easier thanks to our families. I will post more pictures of our baby girl soon - just have to get around to uploading them. Right now Tom and I are going to fold laundry because Pudge no longer has a spot to sleep on the couch due to the overflowing pile of it.
Love you all,
Tom, Emily, Brody, & Lila
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